• The group of Mary-Louise Rogers published an excellent review on urinary biomarkers for ALS mentioning support by premodiALS.  Please access the full article (open access) here:

  • In October, we were happy to present the premodiALS project to French and German ALS experts at two different events. On 11-12th October we discussed a poster on premodiALS during the 9th ALS and MND Research Days in Paris, France. And on October 12th/13th we presented at the ALS MND Science Days of the German Motor Neuron Disease Network (MND-NET) in Frankfurt, Germany.
  • We are happy to announce that the premodiALS consortium agreement has been signed and sent to all collaborators. Furthermore, recruitment centers from Switzerland and Slovakia also received ethical approval. They will soon be ready to recruit their first patients.
  • Prof. Norbert Zilka and Dr. Monika Koprusakova Turcanova talked to the Slovakian national TV telerano about the premodiALS project. They discussed early symptoms of the disease and asked gene mutation carriers, patients and volunteers to participate in this important project.

  • The first patient has been included in the premodiALS study in Turkyie. We congratulate the entire trial team in the center in Antalya!

    From left to right: Hüseyin Can Kaya, Hatice Değirmenci, Abir Alaamel, Ali Çelik, Hilmi Uysal, Uğur Bilge, Sibel Berker Karaüzüm, Meltem Korucuk.

  • The premodiALS project was discussed with the ALS interest group at an online meeting in March 2023 to raise awareness for participation in this project. The German Society for Muscle Disorders (DGM) featured premodiALS on their website. We thank the DGM for this generous support of premodiALS!