News


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    This year, the motoneuron disease community met again in person for the 34th international MNDA meeting in Basel. A great occasion to reconnect with premodiALS partners and present our project to a broader community. We look forward to collaborating with other initiatives focussing on presymptomatic gene mutation carriers.

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    The group of Mary-Louise Rogers published an excellent review on urinary biomarkers for ALS mentioning support by premodiALS.  Please access the full article (open access) here: https://academic.oup.com/braincomms/advance-article/doi/10....

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    In October, we were happy to present the premodiALS project to French and German ALS experts at two different events. On 11-12th October we discussed a poster on premodiALS during the 9th ALS and MND Research Days in Paris, France. And on October 12th/13th we presented at the ALS MND Science Days of the German Motor Neuron Disease...
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    We are happy to announce that the premodiALS consortium agreement has been signed and sent to all collaborators. Furthermore, recruitment centers from Switzerland and Slovakia also received ethical approval. They will soon be ready to recruit their first patients.
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    Prof. Norbert Zilka and Dr. Monika Koprusakova Turcanova talked to the Slovakian national TV telerano about the premodiALS project. They discussed early symptoms of the disease and asked gene mutation carriers, patients and volunteers to participate in this important project.

    To see the full video click here:...

  • Post date:

    The first patient has been included in the premodiALS study in Turkyie. We congratulate the entire trial team in the center in Antalya!

    From left to right: Hüseyin Can Kaya, Hatice Değirmenci, Abir Alaamel, Ali Çelik, Hilmi Uysal, Uğur Bilge, Sibel Berker Karaüzüm, Meltem Korucuk.